People Who Share Your Experience

Group Gene connects you to a community of people living with the same disease or condition as you.


Why Group Gene?

We created Group Gene as an avenue for people living with genetic diseases to connect, share experiences and advance scientific discoveries. We've also made disease specialists and genetic counselors available to the community to answer questions from members.

For Patients

Living with a genetic condition can be lonely or overwhelming. Group Gene is a community for sharing your experiences, learning from others and participating in cutting edge scientific research.


Group Gene

Signing up for Group Gene is easy. First, create an account and select conditions that apply to you. Second, share your first post with the community. Finally, feel free to ask our healthcare providers any question you have.


For Providers

We are interested in working with genetic counselors and top physicians specializing in the treatment of genetic diseases. Inquire about joining Group Gene.